This Personal Data Notice and Consent form describes how Informa, Pharma Intelligence , Inc. (“Informa”, “we”, “our” or “us”) may collect, use, share and transfer your personal data (i.e., data that identifies you) in the following circumstances:
This document also explains your rights as a data subject. Please carefully review the information below.
Who determines the purposes and means of using your personal data?
Informa determines the purposes and means of using your personal data. You may contact Informa by completing our online privacy form. Our Data Protection Officer may also be contacted at email@example.com.
The address of Informa’s office is:
Protection Officer at Informa PLC
5 Howick Place
London, SW1P 1WG, UK
What personal data is collected?
The following personal data is collected as part of your participation in the Online Community:
The following personal data is collected as part of the Survey:
With whom is personal data shared?
In connection with the Online Community, Informa will receive your personal data. Informa does not share your personal data with Sponsors in connection with the Online Community, but Informa does share non-identifiable aggregated data with Sponsors so that that Sponsors may send updates and communications to Online Community members who have opted to receive such communications regarding potential clinical trials which may be of interest.
In connection with the Survey, if your responses to the Survey indicate you are a potential candidate for a Study and you would like to be considered for the Study, you will have the option to provide your contact information and share your Survey answers with Informa and with various Sites. If you elect to share your personal data with a Site and are contacted directly by a Site, you will receive the name of the Sponsor of the Study for which you are being considered and the Sponsor’s contact details. Please note that the Sponsor is an organization which separately determines purposes and means of collecting, using and sharing your personal data; as such, the Sponsor may provide you with its own personal data notice, which may include information regarding its data protection officer and how to contact that person.
In connection with the Survey, we also share your personal data:
If you decide that you would not like Informa to share any of your personal data in connection with the Survey, simply exit the Survey without submitting it. We will retain certain responses, but this data is anonymous.
Why is this personal data collected, used and shared?
In connection with the Online Community, personal data is collected, used and shared for the following reasons:
In connection with the Survey, personal data is collected, used and shared for the following reasons:
How long will the personal data be kept?
In connection with the Online Community, your personal data will be kept by us for as long as you participate in the Online Community, unless we need to retain your personal data for a longer period to meet our legal requirements or to defend or exercise our legal rights. In these cases, we will retain your personal data only for the period necessary for us to pursue the relevant purpose.
In connection with the Survey, your personal data (should you choose to provide it to us) will be kept by us for 12 months from collection of the personal data from you, unless we need to retain your personal data for a longer period to meet our legal requirements or to defend or exercise our legal rights. In these cases, we will retain your personal data only for the period necessary for us to pursue the relevant purpose.
What are the grounds for the collection, use and sharing of your personal data?
We collect, use and share your personal data based on the following grounds and as permitted by applicable laws and regulations:
What are your rights?
Under certain applicable laws and regulations, you have the right to make the requests listed below. Regardless of whether applicable laws and regulations specifically recognize your right to make the requests noted below, Informa will review and respond to any of the following types of requests:
If you would like to make any of the requests noted above, please contact us (see “How can you contact us?” below). We will make reasonable efforts to honor your request whenever feasible and in all cases we will respond to your request as required by applicable laws and regulations. In your request, please make clear what personal data your request relates to.
You may also contact a data protection authority or other relevant government agency in your country of residence with any concerns about the collection, use, or handling of your personal data.
For individuals in the countries listed below, please refer to the addendum with additional explanation about your rights:
Are you obligated to provide your personal data to Informa?
You are not obligated to provide Informa with your personal data and the collection of your personal data by Informa is not required by law, however, if you choose not to provide Informa with your personal data this will mean that you cannot participate in the Online Community, receive information about Studies or be connected by Informa to Sites for potential participation in Studies.
International Transfers of Your Personal Data
For purposes of the Online Community and the Survey, Informa intends to transfer your personal data from your country of residence to the United States. Laws in the United States may differ from those in your country of residence and your personal data may therefore be subject to different legal protections once it is transferred to the United States. In any event, Informa will use reasonable and appropriate measures to protect your personal data.
How can you contact us?
If you have any questions about this Personal Data Notice and Consent or about the way we use your personal data, or if you would like to submit a request to us, please contact us at firstname.lastname@example.org.
I acknowledge that I may withdraw my consent at any time by contacting Informa’s Privacy team via the online privacy form and submitting a request here.